Two new innovative psychosocial types of care (TOC) will be integrated in the conventional care, the existing care structures will be connected and interventions which are individually adapted to the respective family will be provided. The TOC will be continuously evaluated in a multicentric randomized and controlled study. If successful, they will be transferred in the standard care. All the affected children and family members shall obtain individual psychosocial help in addition to their somatic treatment, which supports a positive coping with the disease and responds to mental disorders. A momentous gap of care will be closed by this project. Furthermore, the mental health and quality of life of children with RD and their family members will be strongly improved.
New psychosocial types of care (TOC)
In the very center of the group there are 2 new types of care (TOC) which meet the following requirements: cross-sectoral, demand-based, family-oriented, interdisciplinary. The face-to-face family intervention CARE-FAM is a cross-sectoral and psychodynamic oriented intervention including diagnostics, early detection and early treatment of mental abnormalities in families with children and adolescents with RD. CARE-FAM is a low-frequent short intervention with 8 sessions per family over a six-month period which can also be carried out in a home visiting context. The principal issues are: coping with the disease, the social network of the family, family relationships as well as previous and coming professional help. It is based on a demand analysis from the viewpoint of affected families, an effect model and pilot studies. Most of all, the mental health, the quality of life and life satisfaction of all family members will be addressed. The online intervention WEP-CARE is addressed to the parents of affected children and adolescents. It is based on principles of the cognitive-therapeutic writing therapy. WEP-CARE also aims at the reduction of mental afflictions such as anxiety symptoms, depressive symptoms or stress disorders and the improvement of the family coping with the disease. The participants accomplish ten standardized writing tasks on a data proof internet platform with the help of trained professionals in a weekly interval and obtain individual feedback.
The model to create sustainable psychosocial care structures in CARE-FAM-NET
At the heart of the model there are the psychosocial TOC and their implementation at 17 clinical locations, completed by the continual evaluations.